Yeah for Soy!

We went to the Cincinnati Children’s Hospital on the 26^th through the 28^th. We were trialing soy since our last visit. It continues to be difficult to assess his progress with the addition in his diet. However, the results came back with no eosinophils. Which means, he can move on to wheat trials, which last four months, while eating soy.

They also did a dexa scan, which looks at his bone density. Last year when it was done he was at a -2%. For those of you who don’t know what that means, he is in the negative percentile from other children around his age. They like him to be in the range of 40% to 60%. When tested again he was in the same percentile. He will need to ingest more vitamin D in order to combat the problem with the bone density.

Other than that, Austin has had an exciting summer break already. We went to Disney 4 weekends ago and he started at the Palm Beach Recreation Center. Yesterday they went canoeing, tomorrow they are off to Rapids Water Park and then they cap the week off with a movie. I think I might consider summer camp myself.

Please review the list of allowed food items on the right as well as his medication list.

Back to Ohio

Austin and I will be traveling out for another appointment at the Cincinnati Children’s Hospital on February 1st and 2nd. We will be traveling to the Dayton facility instead of the hospital in Cincinnati. The flights are much less expensive.

His procedure will be on the 1st at one o’clock. It will be performed by the same doctor that performed his other procedures. His name is James P. Franciosi.

There are two things that they will be looking for with this endoscope. First is to make sure that he has maintained with the increase of steroids and prevacid. If so then they will consider giving him another food that was eliminated from his diet. He was given back milk back after our last visit. Our options for this trip are Nuts, Soy and Wheat. John and I are leaning towards soy.

On the last visit they did a biopsy of his upper intestines and found white blood cells. Apparently those are not supposed to be there. This is called Eosinophilic Gastroenteritis. They will be gathering more biopsies to see if he does in fact have Eosinophilic gastroenteritis.

Stay tuned.